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Welcome to Myositis Clinical Trial Consortium (MCTC) project survey.

It takes about 1 minute to complete and will help us gauge your interest.

To view project details: https://drive.google.com/file/d/1L8Dv3A2coflOLI8zsjgIdfjjbWjSD049/view?usp=drive_link

Thank you for participating!

PRIVACY STATEMENT: The Myositis Clinical Trials Consortium (MCTC) securely collects and stores members' and collaborators' information via RedCaps. Personal data will not be shared without individuals' express consent. Anonymized data will be used for membership assessments, research, and collaborations to support MCTC's goals. Participants may opt to withdraw their consent and remove their information from the registry at any time by contacting the MCTC registry manager (Myositis.MCTC@gmail.com)

Member name

First Name:
Middle Name:
Last Name:

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How do you want to contribute? (Select all that apply)

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Designing the Study

Literature Review

Data Analysis

Data Contribution/ Collection

Patient Perspective

Project Coordination

Data Extraction (Such as SLR)

Mentorship

Other (Please Specify)

(One selection allowed per column)

First Preference

Second Preference

Third Preference

1. Developing and Validating 'Remission' and 'Low Disease Activity' Criteria for Idiopathic Inflammatory Myopathies

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2. Standardizing the Definition of Progression in IIM-related ILD

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3. Evaluation and Revision of the 'Clinical Worsening' Definition in IIM Clinical Trials

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4. Appropriateness and Feasibility of Outcome Measures in IIM

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5. Global Patterns and Challenges in Patient Recruitment for Idiopathic Inflammatory Myopathy Clinical Trials: Results from the 2024 MCTC Investigators' Survey

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6. Gaps in Training and Expertise in Myositis Outcome Measures: Insights from the 2024 MCTC Investigators' Survey

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7. Characteristics of IIM Patients Enrolled in Clinical Trials Compared to "Non-Study" IIM Populations

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8. Assessment of the Potential for Shorter Duration of IIM Clinical Trials (52 vs. 24 weeks)

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9. Scoping of Perceived Reasonable Fair Market Values in Myositis Clinical Trials

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10. Pharmacokinetics and Optimal Dosing of IVIG in Dermatomyositis

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Do you want to recommend a project that the MCTC should consider for 2026?

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